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Opioid Addiction Is a Huge Problem, but Pain Prescriptions Are Not the Cause:

Cracking down on highly effective pain medications will make patients suffer for no good reason.

naidw.org/blog/members-myblogs/opioid-addiction-is…

Norwalk Pain Patient Goes On Hunger Strike

Norwalk Pain Patient Goes On Hunger Strike NORWALK, Iowa– After taking prescription painkillers for years, Ryan Lankford says he was forced to turn to over-the-counter pain relief. “I’ve been taking what is… whotv.com/2016/05/09/norwalk-pain-patient-goes-on-hunger-strike/

List of medical conditions that get expedited handling on disability claims:

"Compassionate Allowances (CAL) are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective.naidw.org/groups/viewgroup/111-social-security-dis…

naidw.org/groups/viewgroup/111-social-security-dis…

Social Security Disability (SSDI) Support Group Welcome to the Social Security Disability (SSDI) Support group page. Join NAIDW.org® now to start participating in the group. Support group for all injured &… naidw.org/groups/viewgroup/111-social-security-disability-ssdi-support

Prince did not die from pain pills — he died from chronic pain.

Prince had a medical condition — chronic pain — which is criminally under-treated.

naidw.org/blog/members-myblogs/prince-did-not-die-…

How do doctors get paid?

naidw.org/groups/viewdiscussion/1960-how-do-doctor…

How do doctors get paid? Imagine going to your favorite restaurant.  You are greeted at the door by the hostess, who seats you and takes your drink order.  You order… naidw.org/groups/viewdiscussion/1960-how-do-doctors-get-paid?groupid=183

Got Drugs? - National Prescription Drug Take-Back Day is tomorrow April 30, 2016
10:00 AM - 2:00 PM

The National Prescription Drug Take-Back Day aims to provide a safe, convenient,

and responsible means of disposing of prescription drugs, while also educating the general

public about the potential for abuse of medications.

Locate a Collection Site Near You - naidw.org/groups/viewdiscussion/1696-national-pres…

Today I was accused of trafficking in drugs. Today I was accused of being a junkie. Today I was drug tested, to prove I wasn’t a liar. Today I understood exactly why we have a heroin problem in this country.

naidw.org/blog/members-myblogs/today

Today Today I was accused of trafficking in drugs. Today I was accused of being a junkie. Today I was drug tested, to prove I wasn’t… naidw.org/blog/members-myblogs/today

Cape pain patients 'stuck' with #opioid #stigma

Cape pain patients 'stuck' with opioid stigma Being treated like a medical pariah is becomingly an increasingly common experience for pain patients. Chronic pain patients see themselves as collateral m.capecodtimes.com/article/20160416/news/160419551
sitemanager posted a new discussion4 weeks ago

Prince Treated for Opioid Overdose Days Prior to Death

Wednesday, April 27th, 2016 Celebrity media website TMZ.com has reported that the April 15 emergency landing of music icon Prince’s private plane days before his death was related to an overdose of the opioid painkiller Percocet (oxycodone and acetaminophen). The website further reported that Prince was injected intramuscularly with the opioid overdose rescue medication naloxone (Narcan) while in the hospital. Initial reports had stated that the performer’s medical emergency was related to a lingering case of the flu. Narcan is used to treat opioid-induced respiratory depression, a potentially fatal adverse event that can occur following an opioid overdose. Prince’s plane made an emergency landing in Moline, Ill. for a medical emergency on April 15. He was taken to a local hospital, treated and released approximately three hours later, according to several media outlets. Prince was traveling from Atlanta, where he had performed what proved to be his final concert, an 80-minute set that was scheduled as a make-up for two concerts he had missed in the area on April 7. Prince died yesterday at age 57. The results of an autopsy performed this morning have yet to be reported. TMZ’s report stated that Prince had been taking Percocet for hip pain, and that he had surgery for a hip problem in 2010. It has been widely reported for years that the artist, a Jehovah’s Witness since the early 2000s, did not drink or take drugs.

Chronic Pain Support

Is exercise the new prescription medication for some chronic physical and mental health problems? Many doctors, including primary care physicians, internists, and psychologists, are starting to think so. There is already a known positive connection between exercise and better overall well-being, and now instead of reaching for the Prozac some doctors are starting to encourage their patients to go for push-ups instead. "Exercise is not a new medicine, it's really an old medicine," Boston physician Michelle Johnson said in a recent Associated Press article on the topic. Other experts quoted in the article state the need for increased access to exercise facilities in low-income neighborhoods so that all patients can reap the benefits of exercise for better overall health.

Is exercise the new prescription medication for some chronic physical and mental health problems? Many doctors, including primary care physicians, internists, and psychologists, are starting to think so. There is already a known positive connection between exercise and better overall well-being, and now instead of reaching for the Prozac some doctors are starting to encourage their patients to go for push-ups instead. "Exercise is not a new medicine, it's really an old medicine," Boston physician Michelle Johnson said in a recent Associated Press article on the topic. Other experts quoted in the article state the need for increased access to exercise facilities in low-income neighborhoods so that all patients can reap the benefits of exercise for better overall health.

Dr. Oz: Doctors ‘went too far’ in prescribing opioids for pain....

The central and peripheral nervous systems, removed from the body.

The central and peripheral nervous systems, removed from the body.

3 reasons the new CDC opioid medication guidelines hurt patients - naidw.org/blog/members-myblogs/3-reasons-the-new-c…

- feeling powerful

- chronicpain

The Obama administration plans to forgive $7.7 billion in federal student loans held by nearly 400,000 permanently disabled Americans.

naidw.org/blog/members-myblogs/obama-to-forgive-th…

Obama To Forgive The Student Debt Of Permanently Disabled People Source: Washington PostThe Obama administration plans to forgive $7.7 billion in federal student loans held by nearly 400,000 permanently disabled Americans. By law, anyone with… naidw.org/blog/members-myblogs/obama-to-forgive-the-student-debt-of-permanently-disabled-people

Basic Myths about Disability I Can’t Believe We Still Have to Debunk.

CDC Opioid Prescribing Guidelines Misguided, Docs Say

sitemanager shared a video in Chronic Pain Support group. 2 months ago

The Vein Viewer Means No More Poking People...

Video demonstrates the VeinViewer - a device which allows you to see through the skin.

Safe but inadequate: Tylenol flunks back pain test

naidw.org/groups/viewdiscussion/1844-safe-but-inad…

Safe but inadequate: Tylenol flunks back pain test 4:29 p.m. CDT April 1, 2015 For the study, Gustavo Machado from The George Institute for Global Health at the University of Sydney in Australia… naidw.org/groups/viewdiscussion/1844-safe-but-inadequate-tylenol-flunks-back-pain-test?groupid=181

Is chronic fatigue syndrome finally being taken seriously?

www.theguardian.com/lifeandstyle/2016/apr/04/chron…

Is chronic fatigue syndrome finally being taken seriously? Once dismissed by many doctors as a psychological illness, new research suggests CFS has its roots in infection – and there is hope of successful… www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously

How the War on Drugs Is Hurting Chronic Pain Patients?

naidw.org/blog/members-myblogs/how-the-war-on-drug…

How the War on Drugs Is Hurting Chronic Pain Patients When 58-year-old Zyp Czyk* had a serious mountain biking accident in June, she refused to go to the emergency room even though her injuries knocked… naidw.org/blog/members-myblogs/how-the-war-on-drugs-is-hurting-chronic-pain-patients

Chronic Pain sufferers would you be interested in completing a short survey for a Living Community for Chronic Pain sufferers only? If so, please respond to this post. Thanks!

CDC Guidelines Instruct Pain Doctors Not to Test for THC:

The Centers for Disease Control and Prevention, in long-awaited guidelines on prescribing opioid medications for pain, gives tepid endorsement for the use of urine testing before and during opioid therapy for pain, despite its statements that, “Urine drug tests do not provide accurate information about how much or what dose of opioids or other drugs a patient took,” and "The clinical evidence review did not find studies evaluating the effectiveness of urine drug screening for risk mitigation during opioid prescribing for pain.”

naidw.org/blog/members-myblogs/cdc-guidelines-inst…

CDC Guidelines Instruct Pain Doctors Not to Test for THC The Centers for Disease Control and Prevention, in long-awaited guidelines on prescribing opioid medications for pain, gives tepid endorsement for the use of urine testing… naidw.org/blog/members-myblogs/cdc-guidelines-instruct-pain-doctors-not-to-test-for-thc

CDC Releases Guideline for Prescribing Opioids for Chronic Pain

CDC Press Releases Take a look at the latest and archived public health news releases published by the CDC. www.cdc.gov/media/releases/2016/p0315-prescribing-opioids-guidelines.html

- chronicpain

Nerve and pain locations chart. - chronicpain

Nerve and pain locations chart.

#chronicpain life is real... - chronicpain

#chronicpain life is real...

Must watch video: #‎ME‬#‎CFS‬#‎SEID‬#‎invisibleillness‬#‎youdontlooksick‬#‎chronicpain

naidw.org/members-lounge/members-lounge/videos/vid…

Fibromyalgia In-Depth Report - Fibromyalgia is a syndrome of unknown causes that results in lasting, sometimes debilitating, muscle pain and fatigue. Fibromyalgia is also known as fibrositis or fibromyositis.

naidw.org/blog/members-myblogs/fibromyalgia-in-dep…

Fibromyalgia In-Depth Report Fibromyalgia In-Depth Report Background Fibromyalgia is a syndrome of unknown causes that results in lasting, sometimes debilitating, muscle pain and fatigue. Fibromyalgia is also known… naidw.org/blog/members-myblogs/fibromyalgia-in-depth-report-1

How Not to Treat Chronic Pain? The Way We Do.

naidw.org/blog/members-myblogs/how-not-to-treat-ch…

How Not to Treat Chronic Pain? The Way We Do! By ELLEN SUE STERN I’m trying to get into a clinical trial for a new chronic-pain drug. You’d think I was competing for a seat… naidw.org/blog/members-myblogs/how-not-to-treat-chronic-pain-the-way-we-do?utm_campaign=shareaholic&utm_medium=facebook&utm_source=socialnetwork

17 Things You’ll Only Understand If You Have A Rare Disease...

naidw.org/groups/viewdiscussion/1807-17-17-things-…

CDC’s proposed guidelines on opioids create uproar. The proposals were so restrictive, they said, that many chronic-pain patients would no longer be able to get the dosages they need.

naidw.org/blog/members-myblogs/cdc-s-proposed-guid…

CDC’s proposed guidelines on opioids create uproar Critics, including Myra Christopher of the Center for Practical Bioethics, say plan ignores needs of pain patients Supporters are frustrated by delay in guidelines BY… naidw.org/blog/members-myblogs/cdc-s-proposed-guidelines-on-opioids-create-uproar

I HAVE A CRAZY IDEA ---- I NEED YOUR FEEDBACK DESPERATLEY !
What would you do if there was a place you could go where it didn't snow, never got below 40, had all the facilities you needed to have reasonable care and only be 35 miles from one of the best teaching hospitals in the country? What would you do if you could cut your mortgage or rent in HALF guaranteed? What would it be like to live in a town where everyone was in some way like you, living in pain, understanding that you need drugs to just get through a day, where you had the largest support network conceived of for people with chronic pain? Think I'm nuts? I'm not - read on....
Our Government in its infinite wisdom has just recently abandon and entire self sustaining town. Tree lined streets, retail centers, a building that could easily be turned into a clinic, Fire and Police Station, a huge community center with restaurant and bar, swimming pools for adults and kids, playgrounds, and a 105 suite style residence building that could become a care facility for those who can no longer do for themselves. !25 acres with one side on the Patomic River and the other the George Washington National Forest. Completely fenced with a gated entrance. This spot tucked away in the blue ridge mountains, 35 miles from Charlotsville VA and one of the best teaching hospitals is valued at 200 million dollars. I have a chance to buy the whole thing - everything, lock stock and barrel - for 1 million dollars.
I am not asking anyone...
Show more

Social Security Disability Process Hurt by Long Wait Times - naidw.org/blog/members-myblogs/social-security-dis…

Social Security Disability Process Hurt by Long Wait Times By Kelli Kennedy | Associated Press MIAMI (AP) — Diabetes, arthritis and open-heart surgery have kept Sherice Bennett from working, but she can’t afford her… naidw.org/blog/members-myblogs/social-security-disability-process-hurt-by-long-wait-times

Tax Information for People with Disabilities - Internal Revenue Service (IRS) Publication 907 has information that people with disabilities can use to prepare their 2015 tax returns.

naidw.org/blog/members-myblogs/tax-information-for…

Tax Information for People with Disabilities Click on Link ---> Tax Information for People with Disabilities Internal Revenue Service (IRS) Publication 907 has information that people with disabilities can use to… naidw.org/blog/members-myblogs/tax-information-for-people-with-disabilities

Dollars for Docs...$$$

Dollars for Docs ProPublica has compiled the disclosed payments from pharma companies to doctors and http://projects.propublica.org/d4d-archive/search?utf8=✓&term=LUCINDA+bateman&state[id]&company[id]&period[0]&services[0] health care providers. Search for your doctor in our interactive database. projects.propublica.org/d4d-archive/search?utf8=

MUST READ! - A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they'd be asked the "half empty or half full" question. Instead, with a smile on her face, she inquired: "How heavy is this glass of water?"

Answers called out ranged from 8 oz. to 20 oz.

She replied, "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, it's not a problem. If I hold it for an hour, I'll have an ache in my arm. If I hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn't change, but the longer I hold it, the heavier it becomes." She continued, "The stresses and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them a bit longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed – incapable of doing anything."

It’s important to remember to let go of your stresses. As early in the evening as you can, put all your burdens down. Don't carry them through the evening and into the night. Remember to put the glass down! - feeling focused

MUST READ! - A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they'd be asked the "half empty or half full" question. Instead, with a smile on her face, she inquired: "How heavy is this glass of water?"<br /><br />Answers called out ranged from 8 oz. to 20 oz.<br /><br />She replied, "The absolute weight doesn't matter. It depends on how long I hold it. If I hold it for a minute, it's not a problem. If I hold it for an hour, I'll have an ache in my arm. If I hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn't change, but the longer I hold it, the heavier it becomes." She continued, "The stresses and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them a bit longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed – incapable of doing anything."<br /><br />It’s important to remember to let go of your stresses. As early in the evening as you can, put all your burdens down. Don't carry them through the evening and into the night. Remember to put the glass down!

Draft CDC Opioid Guideline: Pain Medicine Experts Discuss

Where Chronic Pain Patients Fit Into The Opioid Crisis?

naidw.org/blog/members-myblogs/where-chronic-pain-…

Where Chronic Pain Patients Fit Into The Opioid Crisis Here & Now has reported extensively on the opioid crisis, the increasing numbers of people becoming addicted to prescription pain pills and heroin, and the… naidw.org/blog/members-myblogs/where-chronic-pain-patients-fit-into-the-opioid-crisis

25 Secrets of People With Chronic Illnesses

14 Early Warning Signs Of Mold Toxicity Everyone Should Know (Millions Are Exposed Every Day).

naidw.org/groups/viewdiscussion/1933-14-early-warn…

#PatientsNotAddicts: Dependence Vs Addiction

There is an important difference between physical dependence and addiction! Just because we take opiates for our chronic debilitating pain does not mean we are addicted!

naidw.org/index.php

#PatientsNotAddicts: Dependence Vs Addiction #PatientsNotAddicts: Dependence Vs Addiction There is an important difference between physical dependence and addiction! Just because we take opiates for our chronic debilitating pain does… naidw.org/index.php?option=com_community&view=videos&task=video&groupid=344&videoid=514&Itemid=846
webmaster has liked a Video 3 months ago

Chronic Pain: The Invisible Disease

Cool Group's documentary for the RSJ's TV Documentary class. Chronic pain affects one in five Canadians. The cause and type of pain can vary greatly from per...

If you want help out of a situation and you have no idea how to get out, a crappy suggestion may be your best bit. If you have no better ideas, your ignorance and lack of education is showing. Let others check out the information to determine its worth. . There is nothing outrageous about. Simple yet difficulty to believe. Just trying to see who really wants a way out if pain hell. You do not have to help yourself....keep waiting. Keep waiting.

Where Do Chronic Pain Patients Fit Into The Opioid Crisis?

#‎stigma‬#‎chronicpain‬#‎opiods‬#‎patientsnotaddicts‬

Read Blog - naidw.org/blog/members-myblogs/where-chronic-pain-…

Where Chronic Pain Patients Fit Into The Opioid Crisis Here & Now has reported extensively on the opioid crisis, the increasing numbers of people becoming addicted to prescription pain pills and heroin, and the… naidw.org/blog/members-myblogs/where-chronic-pain-patients-fit-into-the-opioid-crisis

Prevalence and Most Common Causes of Disability Among Adults

Guys I made a mistake with the URL for the Mario game - it's called "Not So Super Mario " and this link should work www.youtube.com/watch It gave me the laughs I needed today - hope it does so for you.

Not So Super Mario

צוות תכל'ס: לירון אטיה, רועי מישר וגדי וילצ'רסקי https://www.facebook.com/tachles15 קונספט, בימוי וסאונד: Look & Listen ארט ואנימציה: ערן קרן המלך

This entire publication should be removed. It does not apply to people who actually read and want to learn. Sterod, I've said it before and I'll say it again - GO SOMEWHERE WHERE PEOPLE WILL PAY ATTENTION TO YOUR CRAP - TRY FACEBOOK OR SOMETHING BUT QUIT WITH THIS GARBAGE!

Happy Valentines Day all, my son's fiancé sent me this video and it gave me one much needed laugh. It's too cute to miss. Give yourself a laugh on me today and check this out she said it reminded her of me www.facebook.com/20855496229283/videos/95966731078…

Special report: Pharmacies denying legitimate prescriptions.

TV’s Michelle Watt killed herself due to agonising pain from spinal operation says dad Jim. The former host of television show 60 Minute Makeover passed away at her home in Scotland a week ago, aged just 38.

naidw.org/blog/members-myblogs/tv-s-michelle-watt-…

Here's what women's sleeping positions says about them! MUST READ!

We all have our own sleeping positions right? Most of us chose to sleep in the position that we find comfortable, but then are you wondering what your sleeping positions says about you?

naidw.org/blog/members-myblogs/here-s-what-women-s…

Put your Medicines Up and Away

Up Away | Put your Medicines Up and Away Approximately 60,000 young children visit the emergency room each year because they got into medicines that were left within reach. Keep your child safe. upandaway.org/

Carrie I know, but sometimes I just have to let some ignorant s.o.b. have it. It may not change his ignorance, because there none so blind as those who will not see, but in the end....I feel a little better. Even if it is just for a minute. Thanks.

You're not going to change his mind sometimes you just have to ignore and forgive ignorance. You don't have to justify your illness to anyone. No one knows what you go through or how you feel except you and if you can look yourself in the mirror and say I have done everything I can that is all that matters. We research and over research this disease to exhaustion so why waste any precious time on the opinion of someone that doesn't matter. He has no affect on your life, honestly I've gotten quite a chuckle on the dry and wet needling, priceless. Don't spend any more time trying to explain something to someone that doesn't understand nor wants to learn about this disease. From what little I know about the both of you I can see you are intelligent, well informed and have been proactive in trying to find a way to survive this. I know it stings when someone tries to tell you your pain isn't real or this disease isn't real but you know the truth. You can't change his mind the funny thing is he thinks we are close minded just blindly being led astray by our doctors but we know better. We know we've tried every diet, supplement vitamins bio feedback, SCS, nerve blocks PT (pushing ourselves to tears) breathing techniques meditation and just plain old faking being happy in hopes it will become true. Tonight, tonight I'm tired and I'm tired of fighting this disease/workers comp and trying to find some way to get through the night. I don't know if I can find the energy to do this...

sterod Gee, I'm so glad you have finally found a cure for Causalgia. I'll just call my surgeon and cancel right away. (There really should be a special "I'm being facetious" font.) If someone were to attempt to massage my affected foot, I could not be held responsible for my actions. No jury could possibly convict me for whatever I might do. With every stroke of the keyboard, you have proven more and more and more that you have absolutely no clue about CRPS, RSD, Causalgia, or any of the 1/2 dozen other names our condition has been called over the last 150 years since it was first named. It appears you haven't got the brains to look at the wealth of information on the subject right here on this site alone. It is quite a bit past time for you to stop writing on the subject, and stop pretending that you are treating anyone with this condition! I cannot tolerate the pain of ANYTHING so much as lightly brushing against my skin. I personally would break someones arms rather than sit back and let them stick a needle in that area. You have no clue what you are talking about! Move on to some other place, someplace where people don't have to suffer with incurable pain until the day they die. Jackass!

@sterod I have a dear friend who is a master of ancient Chinese medicine, he says that all that you profess is pure unadulterated bullshit! causalgia was named during the Civil War ( a little before the 50's) and treatment of the unnamed pain disease with the same symptoms can be traced back to the Court of I think Luis lV which would make it the 1600's. Either study more or speak less because all you are doing is shoving your foot further down your throat.

You are not going to find any correct info on the web. Someone does not want you to see it.

I've traced causalgia back to 1950s p75, this is prolotherapy book describing who to treat such a pain syndrome. Today I simply use dry and wet needle which is the more invasive form of physical therapy. Massage ===> Chiropractors ===> thin needling ===> hypodermic needling.

Jerry S. I've seen the Wikipedia thing, I like it, and I am printing it out for my visit with the surgeon next week. Lucky for me, since my injury occurred while I was in the Navy, the VA is taking care of all the expenses for my treatment. For all the bad stories going around about VA hospitals these days, the one I go to, Loma Linda VA Medical Center, Loma Linda, Calif. has been great. I couldn't ask for any better. Last year they sent me to Long Beach for a 2nd opinion on the best course of treatment, and I found out how good I really do have it. Let's just say I won't be going back to Long Beach ever again for anything, no matter what. The Chief of Orthopedics at Loma Linda is fairly knowledgeable, but he also is smart enough to admit when he is in over his head. I am now being seen by a specialist in a civilian hospital, at VA expense. My CRPS is type II, meaning they can definitely point to the specific nerve injury as the cause of it, it is still at the site of the nerve injury, and from Jan. 1979 to now, it still hasn't spread, it has only become more and more painful. I haven't been able to walk without a stick for years, and because of that injury, I have beat up my good foot badly enough from over-use to require corrective surgery a couple of years ago for plantar fasciitis. I won't say I'm stuck in a wheelchair, but since I use one more often than not, the VA forked out the big bucks to have an ultra-lightweight chair custom made for me. And I totally agree...

Just to add a little to the discussion. CRPS Type or Stage 2 Cold Type is what is also referred to as atypical CRPS. Most people who have CRPS in any stage have to deal with skin reddening, excessive sweating, weird hair growth or loss, funky nail growth and of course the inevitable PAIN! Stage 2 is most often caused by damage directly to a nerve - in my case I had two nerve roots ripped off my lumbar spine (second injury) - Atypical or cold Type, means your skin turns blue and very cold, you rarely if ever sweat, your pain is worse than regular CRPS, it like all dirivetives of RSD does spread. If you are stuck in the colder climates like me in NH, like Carrie said WINTER SUCKS. You get a hypersensetivety to Cold with atypical CRPS and heat and hot weather are your best friend. So to sum it all up: As if stage ll isn't bad enough stage ll cold type is usually a life sentence, not much chance of remission, you need custom tailored meds to help knock out some of the pain. Ketamine does not work for CRPS ll Cold Type. Before I went through my life saving I called the clinic in Florida. I was told it was $10 grand just to walk in the door and a Ketamine Coma to reboot my brain with a 1 in 28 chance of success was $50 grand. I couldn't afford it, and the odds sucked for a 50K outlay so I wrote it off. I have tried the Ketamine drip, went every other day for 3 weeks - got nothing. If it's out there I've pretty much tried it, but STAY AWAY FROM THE STRIP MALL PAIN CLINICS - they...

wbrianiii, if you want an article that actually explains RSD/CRPS and it stages etc. try looking up CRPS on Wikipedia. That's the piece I take with me to every Doctor I see. It's in English so we can understand it but it also has research references and other information that Doctors find credible.

MULTIPLE SCLEROSIS SUFFERER ANTHONY VIRGONA WILL START PROCESS TO END HIS LIFE TOMORROW

Ok does anyone have dystonia with their RSD? The dystonia creates small repetitive movement / twitchy muscles / limb moving and twisting.

This may help a little. It is one of the best articles I have found that lists the differences between CRPS Type I (RSD) and CRPS Type II (Causalgia)

What every doctor that deals with this there is no 'perfect' protocol which I assume is the difficulty in finding treatments that work. I was on 1200 mg of neurotrins for I think 2 years but they kept in a state of not knowing if I was awake or asleep. I did everything I could and do everything I can which is why I probably saved my arm because it was dark purple everyday all day 7/24 and was going to need to be amputated not to cure RSD but because the limb was lost to lack of blood flow. A lot of treating RSD is treated in the manner of this may or may not work. I did nerve blocks and 2 hours later limb was purple again and ice cold. I tried the SCS and it had to be turned on so high that the bottoms ofmy feet buzzed so not exactly changing my quality of life for the better. At home i have done lots of exercising including small weights to try and keep what muscle and movement i have left. Drug companies don't look for a cure because it is not as sexy as curing AiDS, Cancer or erectile dysfunction. Why would changing percocet from 5mg to 7.5 be a 94.00 dollars more in a copay?5mg 6.00 and 7.5 mg 100.00 to me that is excessive. Drug companies are big business, the lobby to keep cost up. There is that idiot all over the news because he took (numbers are not a true reflection) a 10 medication and changed it to 5k. Health/health care is big business that does not like sick people. They are all about profits and research, research is only invested if the return is high. Cures...

If I can help a little here. In the early 90's I was diagnosed with RSD as a result of a crush injury where they took my right shoulder out in 54 pieces. Whether it was the injury or the surgery no one knows what started the RSD. For my luck I had an anesthesiologist who had done his residency in a Florida hospital and his specialty was RSD. I had been given a list that looked like a small town telephone bill of what I couldn't do. Now this was just my right arm and hand. I had a 2 year old son and I wanted very badly to just be a dad, when I came home from the hospital after shoulder surgery, a median nerve release in right forearm and a carpal tunnel ulner nerve release he called me "Robo Dad". I went back to the anesthesiologist (Mike) and the first thing he did was throw the list of can't do's in the trash. He said to me, do whatever you want, restore your corvette, play hoop with your son and when the pain get too bad come see me. At first I was seeing him every week, then once a month and within 5 years complete remission. What did he do? Put me on Neurontin 1200 mg a day because Neurontin helps to rebuild nerve fibers and in some cases re routes them, second he gave percoset for pain, and the instruction was use as little as you can. Third he said when it gets bad come see me, when I did I would lie on my stomach and he would put his finger on a spot around my right shoulder which would almost bounce me off the ceiling - that was the nerve bundle causing all the...

wbrianiii, you are not alone man, there are those of us on this site who have chosen to help others with this unrelenting pain. we are here to listen, pass on what we've learned, and offer what support we can on line.

Sterod, In the 60's they knew little or nothing about CRPS or causalgia as they called it back then, and even so they only dealt with what we call Stage 1 or RSD. When I was first diagnosed in the early 90's I was told it would either burn itself out in 6 months to a year or I would have it for life. The Doctor I see is listed as one of the 10 best in the Country - no. 2 to be exact. His approach was to try all of what you have done for a year, the disease progressed despite my everyday efforts with the program. As is now known the pain if related to a physical injury transforms from a site based pain to a brain based pain. That said no amount of massage, vitamins or what you call the answer will do a damn thing. I have been a physically active person my entire life, I ran and worked a successful Construction Company and my average work week was 60 hours in the field with another 2 or 3 hours a day in the office. I also found time to go to the gym 3 nights a week and at the time of my injury was benching 300, dead lifting 350 and to this day I still do 25 100lb arm curls a day. Despite being in a wheelchair I have refused to give up my 2nd floor apartment sans elevator and I manage. I push myself every day. I'm told I can't walk using my left leg due to the shrinkage or tendons in my knee - I still walk with my cane as much as pain allows. As my wife puts it, I hide the pain very well, but I can't hide the tears. She's right, I have tears in my eyes most every day. I will...

wbrianiii I do hope you find a solution and you're right I don't have a lot of knowledge about type 1 other than it involves actual damage to the nerve. In Germany they have done some studies that show taking an antibiotic for GI infections before and after surgery could prevent RSD. I wasn't going to say anything else on this string but I did want to tell you about that study. Another dr says he has seen improvement in treating SOME RSD patients with an antibiotic for the GI for a month and it can't hurt to try it. Maybe it could help you from having it travel. You are not alone, there are people that do know how you feel that can just listen or let you vent. There is a support group for MO for RSD that you can find on Facebook the administrator for that site is very responsive and knowledgeable. The hardest part about this disease is the isolation, feeling like you are alone and for all the bad social media has created for society it has also allowed people like us an opportunity to connect with other survivors. Even if you can't leave your house with just a few keystrokes you can find an outlet, an ear or a good ole Get Up and start fighting. Sending all the positive energy I can Never give up hope, miracles do happen and obviously you still have something to live for otherwise why would we keep choosing to wake up and do it all over again.

sterod PT is definitely useful in RSD as it is in MS. You are very confused on what RSD is and luckily for you, you don't have any personal knowledge of it either. You are hitting on a very raw nerve, the concept that what is wrong with us is nothing. I was a runner, training for my first marathon, an avid gym rat and now all I can do is walk on a treadmill. Nobody with RSD wants to feel like this and they've all tried and researched everything to a point that this man would like to cut off his foot. What do they opinions are like a**holes everyone has one? Let's all take a step outside of our ego and realize he is in so much pain, he is so desperate he wants to remove his foot! I know of several people that have taken their lives because they are tired of the pain and you don't understand you don't have any clue as why the idea of waking up tomorrow in pain is our own personal hell. I'm seriously considering doing the ketamine coma not because I enjoy being in pain but because I so desperately want my life back. RSD/CRPS is: a CNS class disease' it is an autonomic disorder, an autoimmune disease and has no cure the best one can hope for is remission however there are several trials and studies going on right now that may be the answer. A little education could possibly help you as well. But again let's put your Archie Bunker 6 pack of PBR philosophy and for one second realize there is something more going on here. Perhaps acknowledge his pain rather than...

wbrianiii I've been in the rodeo for 32 yrs. If you believe what you have been told, go ahead. I know for certain that all pain problems of the body have a matched treatment. If you have a diagnosis then they have to prove it by treating it until resolution. If you are still in pain than either they have the wrong diagnosis or do not know of the treatments. In most cases it is both. Don't believe me - Educate yourself. Doing nothing in pain that is located in the muscle system will yield nothing. I'm here to help you out of pain not to argue -- sorry. You do not want help - please do not respond.

Jerry S I'm afraid that you have received the weak tea versions of the above. That is by design giving you the weak treatments so you will think they do not work. 10 yrs ago I practiced the weak tea version until I discovered a book for the 60s that let me know that what I had learned will not up to snuff. Remember we are living in a system controlled by some sophisticated profiteers. They know what they are doing because they have all of the biggest minds working out the game. You have seen Matrix. That is a reality based movie. Ie If you are in a corporate structure that is like the Matrix, They own you while you are at work. Unplug to go home. You cannot unplug from your pain or will yourself therapy. You will have to yell and scream like the squeaky wheel. If your do not yell for help and what your need then you do not exist to anyone.

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